I hate the work 'handicapped'. I hate the phrase 'Special needs' and I hate the term 'Cerebral Palsy'. But I have had to use them and accept them over the last 10 months.
When you look at my son, he is perfect. He's got big brown eyes, long eyelashes, dimples when he smiles, all 10 fingers, all 10 toes. You'd never be able to look at him and see or know that he has Cerebral Palsy.
Cerebral Palsy is basically a catchall term for a variety of disorders that affect a child's ability to move and maintain posture and balance due to a brain injury. So for him, due to the lack of oxygen he had at birth. When I first heard it used for my son I immediatly thought he'll never crawl, walk etc etc. But after researching it A LOT, alot of people with Cerebral Palsy go on to live happy, healthy lives. I talked with many new friends who have kids with CP or people living with CP. I then became more optimistic towards my sons future. Don't tell me he'll never walk, run, jump, play.
I constantly think about if I am doing enough for him. If we moved would he have better therapies and a better chance at walking sooner? Do we have enough money to make it to his next Dr appointment? Etc Etc...For the time being I have to believe that I am but always look and try to find the next best thing for him.
My son is 10 months old. He cannot sit up by himself yet, doesnt crawl or roll over. He has good head control but prefers it all the way back which makes it look like he doesnt. He doesnt reach or play with toys. He hasn't laughed yet. He cannot take any feedings by mouth yet. These are things I know my son will eventually do but don't know when.
He does have good eyesight, hearing, head control, grasp, hes finally smiling at us. He loves looking at toys with lights and music, he loves laying on the bed looking out our patio door. He sucks on his pacifier, he shows interest in wanting to eat by mouth. These are the things I am grateful for. Things that most people take for granted that their child can do. The simple things. EVERY lil new thing that my son does I get excited about.
Its frusterating and it hurts to watch other babys around my sons age crawling, laughing, playing, starting to learn to walk, talk etc etc. It's a feeling I dont think anyone can understand unless you were in their shoes. I see my son get frusterated when he can't do certain things.
We start more physical therapy, occupational therapy, speech therapy, vision therapy etc etc for him in the upcoming months. But as of now all I can say is he is doing a hell of a lot better then the Dr, who told us he would do nothing, said. And that's good enough for me.
Monday, December 8, 2008
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