I made and gave Hubercito his normal 'one-try practice bottle' the other day and he took off sucking that formula down! I was shocked! Since we got the green light to oral feed him he has had some trouble latching on and staying latched on causing him to get frusterated. It usually resulted in him only drinking about an ounce at the most. But for some reason this day he just went at it and drank about half the lil bottle I made for him (maybe 3 oz) and without choking and pretty quickly.
I have since been offering him his bottle or trying to every 2 or 3 hours in hopes that he will drink enough to keep him satisfied throughout the day and then I will only have to plug him to the pump throughout the night. That would make life amazingly more easy for me.
We had a lil throwing up last night so we are taking it a lil easier today supplementing with some Pedialyte to make sure he doesnt get dehydrated. One of his 2 teeth that have been coming in looks as if it has broke through and the other is close behind. He had a fever and wasn't feeling so great last night, Im thinking for that.
Since getting the green light to feed him orally my goal is by the end of this year for him to be able to eat entirely through his bottle and baby food and get his g tube taken out! Seeing him enjoy his bottle and want it and doing such a great improvement I am reassured that that is a very likely goal for him this year!
Monday, March 9, 2009
Thursday, March 5, 2009
Damn Chompers
For months now we have watched Hubercito's 2 bottom teeth come to the surface and then go back down into hiding. Over and over. They are now right there where you can see the whiteness and see the outline of the top of them. They just need to break through!
Poor lil man has been extra grumpy and cranky for these teethies. We have been applying the baby oragel and putting cold washcloths on it which seem to calm him a little.
I cannot wait to see those cute lil pearly whites pop through and be sitting there. He will look sooo cute with chompers.
Poor lil man has been extra grumpy and cranky for these teethies. We have been applying the baby oragel and putting cold washcloths on it which seem to calm him a little.
I cannot wait to see those cute lil pearly whites pop through and be sitting there. He will look sooo cute with chompers.
Some much needed pics
So I promised some pics about 2 months ago lol. You will learn this is just how I am...
Monday, March 2, 2009
CDRC Progress
We had our other visit with the CDRC through their outreach program where they come down to Medford from Eugene. I had been trying to get this set up since forever so I was VERY excited to have got Hubercito an appoinment. Apparently I later found out they are pretty well booked through the year coming about once a month. We will be put on a call list and called if someone else cannot make their scheduled appointment for later appointments.
So we start the day off with a long 2 and a half hour drive with one cranky lil man. He is getting his first teeth in, 2 at once, so he has not been his happy lil self lately. So I really didnt think we would get too much out of him during the therapy session.
Amazingly once we got there he let the physical therapy lady do just about whatever she wanted with him lol. Different stretches, playing, checking out some new toys etc...
We have physical therapy come to our home once a week where they stretch him. But with the CDRC she would for example, lay him down and move his leg to where it needed to be to get ready to roll over, then move his arms into position, then roll over etc etc. Basically showing him how to get to his stomach of he wanted or needed. We worked on rolling over, sitting up and being on his tummy.
Along with him doing so great with all that we got set up for them to send us a lil bumbo chair and a different sort of boppy pillow to continue teaching him tummy time and sitting up. We also got an application for Shriners Childrens Hospital in Portland. They will focus on his legs and joints. X-raying his hips and legs and eventually fitting him for leg braces which he will need to keep his legs in proper position for standing and eventually walking! Shriners unfortunatly has a very long waiting list with a minimum wait of 6 months just to process the application to be put on the waiting list so we just did it early to have it ready.
I once again feel as if I got so much more accomplished with an out of town team then the services we recieve here in isolated Brookings. I am grateful to have got it set up and going though.
So we start the day off with a long 2 and a half hour drive with one cranky lil man. He is getting his first teeth in, 2 at once, so he has not been his happy lil self lately. So I really didnt think we would get too much out of him during the therapy session.
Amazingly once we got there he let the physical therapy lady do just about whatever she wanted with him lol. Different stretches, playing, checking out some new toys etc...
We have physical therapy come to our home once a week where they stretch him. But with the CDRC she would for example, lay him down and move his leg to where it needed to be to get ready to roll over, then move his arms into position, then roll over etc etc. Basically showing him how to get to his stomach of he wanted or needed. We worked on rolling over, sitting up and being on his tummy.
Along with him doing so great with all that we got set up for them to send us a lil bumbo chair and a different sort of boppy pillow to continue teaching him tummy time and sitting up. We also got an application for Shriners Childrens Hospital in Portland. They will focus on his legs and joints. X-raying his hips and legs and eventually fitting him for leg braces which he will need to keep his legs in proper position for standing and eventually walking! Shriners unfortunatly has a very long waiting list with a minimum wait of 6 months just to process the application to be put on the waiting list so we just did it early to have it ready.
I once again feel as if I got so much more accomplished with an out of town team then the services we recieve here in isolated Brookings. I am grateful to have got it set up and going though.
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