Growing, Changing, Learning

We have had a busy last couple of days but have got a lot accomplished and got a lot of great news!
Hubercito and I enrolled in Early Head Start yesterday. If I understand correctly it is more to teach me how to take care of a disabled child (like I didn't already figure that one out!) and just about development and that sort of thing. They come to our house to work with us and they offer play groups for us to attend to meet other familes and just to hangout together and play! So he goes on a waiting list now and should be accepted next month some time.
He also had physical therapy yesterday with his teacher Anne. We got to show her all the changes and new things that he has been doing. He is nonstop moving. Not content to be held or sit still anymore. He definatly knows that he can move around by himself, he just has to keep figuring out how. Also he has been loving being on his tummy and she was really impressed at how long he tolerated it and how well he held his head looking all around. She even said a few of the positions he was putting himself into or that I was putting him into just as I was holding him and talking to her were great and for him to tolerate them was a great foreshadowing into what he will be able to do in the future as far as moving around. One of the major things she was proud of that he is doing is that if he is laying on my lap and I turn him playing as if he is gonna fall off he reacts and pulls himself back. She said that a lot of CP babys brains dont register that they are gonna fall. It seems like something so simple but she said that it is a HUGE thing for him. Our goals for the next month before the therapy school year starts up again is work on side sitting with his legs to the side and arms in front of him holding himself up and also to keep practicing and stretching on the excersise ball.
Then this morning he had an appointment with his new pediatrition Dr Goyle. She is young and very nice and we hit it off right away so I am very happy about that and feel confident that she will be a good Dr for him. She gave me tons of info on some of the things that he is doing such as his raspy breathing. She reassured me that it isnt asthma and something pretty commen in CP babies and even younger newer babies. There are a few different things that could be making him breathe like that that can be fixed or he will outgrow it. He really only does it when he is excited or when he is concentrating and trying to do something. Which lately is ALL day long!She also set him up with a bunch of referrels such as a neurologist, dentist, Ear, nose and mouth specialist, nutritionist etc etc. Plus we got labs drawn to check his seizure medication level and a couple other things. And in later visits she is gonna help me with my dreaded sleep problems with him. All is all she was very thourough and I am excited to get all this going for him! She said once we consult with all these different specialists everything will just all take off and come together for him. We go back in 2 weeks for results of the tests and to get some shots if they find that he didnt already have them done.
I dont know if it is the moving to a different climate, starting more aggressive therapies or just him getting older but he is changing so much and for the better. His G tube site was always a battle for us keeping it dry and the granulation tissue down but it is now completely cleared up and Dr Goyle said it looks amazingly well for a G Tube site!
My baby is growing up and it wont be long before he starts doing all the things they said he wouldn't do but that we always knew he would be doing :)

So Far So Good

We are halfway through July already and so far have had a great month! We are finally all settled in our new place here in Cali and lovin it! We got all of our stuff from Oregon moved down so it finally feels like home here!

Huber got a few weeks off unexpectadly so we took a fast mini vacation back up to Oregon to spend the 4th of July with my Mom and got to see some family and friends while we were there. I just wasnt ready to give up our tradition of the 4th spent on the beach. It of course was freezing cold, being Brookings so we had to bail out early but still fun. It was nice to get out of the heat and into the cold for a couple days!

Hubercito continues to do well. We had our first Dr visit last week. He is just under 20lbs and got a clean bill of health after his physical. We didnt get to see the actual Dr we will be going to see from now on but we are going back this Wed to meet with her. She deals with a lot of Cerebral Palsy babies and has a lot of advice for me on transitioning him from babyhood to toddlerhood. Such as his diet and getting him in to see all the specialists he needs to see.

Our Occupational therapist was nice enough to take a few days out of her summer vacation to work with Huber so we continue working with the walker and learned that we can get some good stretches and excersises out of him on one of those big excersise balls without a lot of protest from him. He is moving around non stop all day, not content to be held like before. And jabbering away non stop! He is definatly more aware of his surroundings and knows what he wants and tries his hardest to get or do it. I worked with him last night on rolling from his back to his stomach and then moving his arms out in front of him and pushing himself up and after showing him only one time he just about had it, only needing a lil help from mommy. But when doing things like that with him you can see the understanding and determination he has. It is very exciting to see!